Worlds Worst Blogger At Your Service!

Monday, May 29, 2017

Yup its me the worst blogger ever! but like I've said before this is more or less a diary of harlow's journey.

So where did I leave off, Mostly you guys follow  me on social medias so you pretty much know what is going on but for those of you who don't let me catch you up!

The last time I wrote in here was the night before harlow surgery. It went great she's a little trooper the surgery was a success the acid reflux has been stopped in its tracks as far as I can tell she is no longer having any issues with it. She had a fundo done which is when the wrap the stomach around the esophagus so help keep everything down and where it belongs. The reason for the tube is because since nothing can come up thats including air. So in order to help her burp she needed it but also harlow has been having a really hard time putting on weight so for now she's on continues feeds thru the tube until she's able to gain weight on her own. This is due to her keto diet (see link below)

https://en.wikipedia.org/wiki/Ketogenic_diet

Long story short she can't have sugar... none what so ever so she's forced to gain weight in fat and carbs which is harder then you think. So that has been a huge pain in the ass for quite some time now and caused all this to happen in the first place changing her diet and formulas so many times really messed up her stomach and intestines. But the past Is the past nothing we can do about it now it just would have been nice if the Drs had paid more attention to it...

Our hospital stay lasted another week after her surgery and lets just say I don't miss it but I do I don't miss the hospital or all the scary stuff that goes with it but I do miss the constant help I'm not going to lie. Having her home now has been a huge readjustment. She having the tube makes everything 10x harder because she's constantly being feed thru the tube so I have to take it everywhere I go and I mean everywhere its not horrible its just harder to get ut the door quickly. Second its hard because you have to keep a eye on her and the pump of she's out of food it will just continue to pump air in to her belly and I can't out a whole lot of food her bag because it needs to stay somewhat cool. so as usual my balancing act continues...

Harlow refuses to eat out of a bottle now and wants nothing to do with her binki. For this mama it is very hard to accept because that was the first thing she learned how to do when the Drs said she wouldn't so its hard for me to let it go. She is teething however and some babies don't want to suck because it hurts. she also got thrush (link below)

https://www.babycenter.com/0_thrush-in-babies_92.bc

So if its not one thing its another right?
Harlows Tube is healing good except its protruding out which means the skin on the inside is comping out of the hole its super gross and annoying hopefully it stops cos it is not fun to deal with.

She had her testing done with the therapist last week and she is still at a newborn level at 7 months old its hard to stomach that but at the same time the test doesn't take in to consideration her vision impairment. so the test is really inconclusive. Also everything that happened with her stomach caused a huge delay because she was doing great and at the level she should be at that a normal baby would be at so this is why I'm able to have the faith I do because I know she can do it its just going to take time.

The dr did however say she is having cognitive thoughts which is HUGE! that means she can think. literally ... He explains it as we all take the free way she takes sides streets and stops to smell the roses. she will get there it just will take a little extra time.

Well that is all for now sorry for all my spelling or punctuation mistakes I'm falling asleep lol told ya I wasn't perfect ... <3

17 comments:

  1. I truly value the sort of themes you post here. A debt of gratitude is in order for sharing us an incredible data that is really useful. Great day! مرض

    ReplyDelete
  2. Why do we need fat? Well, every cell in our bodies has a cell wall that is made 99% of fats. It's why our skin is waterproof.phenq customer reviews

    ReplyDelete
  3. You have written nice so interesting blog. You are doing such a great job and providing well knowledge for everyone.
    Netflix customer service number

    ReplyDelete
  4. I like this post,And I guess that they having fun to read this post,they shall take a good site to make a information,thanks for sharing it to me. supplement reviews

    ReplyDelete
  5. I truly value this superb post that you have accommodated us. I guarantee this would be helpful for a large portion of the general population. look at this website

    ReplyDelete
  6. This is truly a great read for me. I have bookmarked it and I am looking forward to reading new articles. Keep up the good work!. where can i buy herbalife

    ReplyDelete
  7. I have recently started a blog, the info you provide on this site has helped me greatly. Thanks for all of your time & work. debt

    ReplyDelete
  8. first of all i wanna say to all bloggers.
    and u aslo should visit on

    education is the eye of man

    ReplyDelete
  9. HI BLOGERS HOPE YOU ARE DONING GREAT . I RESPECT ALL BLOGERS WHO SHARE HIS PERSEPTION AND THEIR KNOWLADGE
    VISIT HERE VISIT HERE

    ReplyDelete
  10. I'd love to have a lightweight stroller!! It would make all the difference when I'm already holding a heavy child and bags. I'm basically a pack horse.
    syringe infusion pump

    syringe pump manufacturers

    syringe pump suppliers

    ReplyDelete
  11. I really appreciate the kind of topics you post here. Thanks for sharing us a great information that is actually helpful. Good day! socail media marketing

    ReplyDelete
  12. Thanks for sharing these great articals your site look good also check these articals

    Zong daily max Internet package 500MBs
    <--------------------------->
    Zong monthly Whatsapp package
    <-------------------------->
    Mobilink free sms unlimited trick
    <----------------------->
    Telenor free sms unlimited trick
    <-------------------------->
    How to create a free website
    <--------------------------->
    How to check connected wifi password without root and without app
    <---------------------------->
    Mobilink Jazz free facebook with pictures latest trick
    <---------------------------->
    Zong free facebook with pics
    <-------------------------->
    web designing full course for begginers

    ReplyDelete
  13. Most of the time I don’t make comments on websites, but I'd like to say that this article really forced me to do so. Really nice post! Hostgator 60% Off

    ReplyDelete

CopyRight © | Theme Designed By Hello Manhattan