Sorry I lagged!

Monday, February 20, 2017

 OK I'm finally going to do a blog post so sorry for my lagging it's been a busy couple weeks but to update everybody her eye exam it was pretty pointless didn't tell me anything new they said that we're going to have to wait with time to see what she can see and in six months they will reevaluate and see if glasses may help what she already has so whatever but she did have an appointment with the braille Institute they came by so they'll be working with her once a month as well as some other blind company that gives us free services so she has therapy every week she has occupational therapy through Kaiser once a month and two vision appointments every month so we're trying to get her all the opportunities we can as for her acid reflex we switched her formula and it seems to be helping but our newest battle is she hates car rides which wouldn't be so bad if she was just simply crying this girl gets her self so worked up she causes a seizure and drenches herself in sweat and the rest of the day is ruined. She also makes herself throw up because of how upset she is so I can't take her anywhere like seriously are you kidding me thank God I have my mom so I'm able to pop out really quick to get supplies if I need but I hate doing that because I should be able to bring her with me you know? So that's our newest battle trying to deal with that I wish I could say it was a car seat but she has more than enough room it's just her something about the car just does not make her happy let's see this Friday she has an appointment in LA pray for me because that car ride is going to be a nightmare but we meet with the drs to discuss putting her on a special formula to help with the seizures it's a slow process to work it takes about 6 months and I can only imagine the price of this stuff but like I said before if I have to take a loan out for it I will whatever works for her that's what matters  so please pray that it works! I can't even imagine being seizure free omg that would be amazing!!! My best friend and I had baby's a month apart and she came by today today was the first day I realize that my daughter isnt a normal baby I mean I've known it and I've heard it but today I really saw the difference he's a month behind her and he's doing things that she can't do or isn't doing and even though I knew this was gonna happen I guess I just was living in this fantasy world where my daughter was just going to keep up and it was gonna be a miracle but the realistic side of me knew this was gonna happen I just hope that it's a little bit not big chunks that she falls behind right now it's just the laughing smiling being involved acknowledging me and Bobby when we're talking to her I think a lot of it has to do with her vision not so much her brain but it's OK we've been preparing for this and luckily it's not all one big hit at once like it was when I gave birth to her it'll be slow things hopefully it stays that way at least I really don't feel like getting hit by a train again but at the same time it's kind of cool because I get to see what Harlow needs to learn next and what we need to work on but as for developmentally she's hanging in there so I think that's everything I want to say a special thank you to everybody who is supporting my Etsy shop I know I've said it before but you guys really have no idea how amazing it is and how helpful it is I'm able to pay for her medical expenses and that way we don't fall behind on bills so that is a huge stress relief as well as it's giving me something to keep me busy which is something I definitely need so thank you guys again from the bottom of my heart ❤️

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