Finally a solid good day!

Tuesday, November 15, 2016




Today was good from the moment we woke up to right now. Thank god cus I needed it I feel like its always up and down so it was nice to have a good day for a change. So Harlow finally got her new born photos done with her aunt with out any tubes or wires or Nicu beds.... Save to say I LOVE LOVE LOVE THEM!

It is so crazy how much she has changed in just 3 weeks everyone keeps saying "they grow before you know it!" to me I'm slightly ok with that I will miss her being so little and new born but when your future is so unknown its kinda like you wanna get a little further so you can be proactive with her therapy to continue to prove the Drs wrong BUT at the same time I am taking in all the moments and her being so little...

So Monday was SUPPOSED to be our 24 hour EEG to find out if she is having seizures we were on our way to LA and we get a call saying they need to cancel it and they will call us back to reschedule ughhhhh sooooo annoying!! but oh well what can you do.. So today we had a appointment with a occupational therapist that went over everything with us on whats going to happen the next couple months and all the different things we can do to help her progress better... safe to say I love her ( yes Harlow of course but the therapist ) she was sooooo optimistic and told us she's been doing it for over 20 years she sees musicals all the time so to not give up on her don't loose hope or faith and lastly to pray I love it when they give us this type of advise instead of telling me she's going to die. So she did her therapy session and evaluated her and told us she passed with flying colors and if she didn't know anything was wrong with her she would think she was a normal ADVANCED baby becuase of her picking her head up on her own rolling over and so on she's kicking butt! Also she doesn't think she's deaf and isn't convinced she won't be able to see even tho she isn't that type of dr she sees disabled babys all the time so it was such amazing news to finally get after hearing always negative stuff so even if tomorrows not so good its the small victories we have to take and let them make us happy for the time being.

So last but not least she finally got her first real bath and ugh sheeeeee is adorable I cant handle it!!
All the bad things we deal with and its just the beginning its nice to relax with a newborn baby and feel sorta normal for a change.

Pends Drs appointment tomorrow fingers crossed it goes good!


Night guys
 xoxo





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